{"id":744,"date":"2022-08-24T15:26:51","date_gmt":"2022-08-24T13:26:51","guid":{"rendered":"https:\/\/ragedexister.com\/?p=744"},"modified":"2022-08-24T19:03:31","modified_gmt":"2022-08-24T17:03:31","slug":"international-association-for-disability-and-oral-health-quality-matters-defining-quality-of-care-by-philippe-aubert","status":"publish","type":"post","link":"https:\/\/ragedexister.com\/international-association-for-disability-and-oral-health-quality-matters-defining-quality-of-care-by-philippe-aubert\/","title":{"rendered":"International Association for Disability and Oral Health Quality matters defining quality of care by Philippe Aubert"},"content":{"rendered":"<p><iframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/ZsD86_NAWvI\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe><\/p>\n<p style=\"text-align: right;\">Issy-les-Moulineaux, Paris, August 24th, 2022<\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Good morning, ladies and gentlemen,<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">First of all, I would like to thank the organizers of this IADH conference for their kind invitation to give a lecture today as a key speaker.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Thank you for organizing this event, in such a difficult context. To have gathered all participants in person here today after the past two years is already a successful challenge.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I would also like to express my gratitude to the French team, SOSS France, which invited me to speak in 2020 about my experience on special dental care.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Today is the first time I\u2019m using my voice synthesizer device to speak in English.\u00a0 I am delighted to do so with you.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Finally, I would like to thank each and every one of you for attending this congress to discuss inclusive practices in special dentistry care.\u00a0 It does mean a lot for me and for your patients worldwide.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">You have my short biography in the program. But, please let me give you just a few words about myself.\u00a0 I was born with cerebral palsy 42 years ago.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I also have athetosis, which means I have no control over my movements.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I also have no speech function, which forces me to speak to you, via a voice synthesizer with eye control !\u00a0\u00a0<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I am fully aware that understanding me through this system can be complicated. My assistants and I, have made sure to give my speech enough rhythm, and sufficient pauses to allow you to bear with me until the end.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I would like to start my speech now with the importance of the quality of the relationship between patient and dentist. And for me, what matters most is listening.\u00a0<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Listening to the needs of the patient.\u00a0 Hearing, listening, understanding what each patient means to say in its own way.\u00a0\u00a0<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Every patient is different. You already know that all too well.\u00a0\u00a0<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Listening requires a relationship over time.\u00a0 I invite you to take the time, as a professional, to explain in advance, over several days, months or years if necessary,\u00a0 what a particular treatment will consist in. You may try and adapt your words to the understanding of each patient.\u00a0\u00a0\u00a0<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">To make the hospital less stressful, you may suggest that someone who knows well the patient should stay at her or his side,\u00a0 whether during or after the time spent in your department, if practical conditions allow for it.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Listening, meaning in that case taking care of, also means making sure that both the department itself and the people working there are welcoming,\u00a0 as well as the gestures and attitudes of the team that takes care of the person who needs specific dental care.\u00a0<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">This is even more important if the patient has to undergo treatment in a hospital, especially under general anesthesia, if I shall speak about my personal situation.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Listening also means considering not only the treatment, but the social role of good dental aesthetics, and the way in which the treatment will affect the life of the person receiving it.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Listening in its prime sense is the body function. It seems essential to me to make the link with the way I express myself.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Before I mastered the alphabet and the French language, I used to communicate mainly using facial expressions.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Even now, this remains a crucial means of how I express my emotions, something which cannot always be conveyed through my digital voice !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I became aware very early of the role of my eyes, of my gaze.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Thanks to the way I used my eyes, my friends and family understood very early my desire and capacity to communicate and to be heard.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">But, since I never pronounced a word, nor even emitted understandable sounds I couldn\u2019t understand the importance of my mouth and dentition.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">To me, my mouth and my teeth were necessary to eat, but not to communicate.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Actually, for very long, my teeth were quite a source of problems, considering how difficult it was for me to receive any treatment, but I will tell you more about this later.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Therefore, it is only quite recently that I became aware that my mouth and my teeth played an important role in my expressions and aesthetics.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I had to go to the extreme of having all my teeth replaced so that I could claim, and finally appreciate, my mouth and dentition.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">And thanks to the gaze of every person I met since, I was able to discover my face,\u00a0 its representation and my right to bite into life or crunch life to the fullest.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">That\u2019s why my words today might cut and bite !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I simply want to testify that getting dental treatment is more than a medical act for oneself, it is an act of dignity, an act of recognition, for oneself and for others.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">It contributes to the construction of your own self, but also affects your relationships with others.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">But, a dental journey can be difficult, especially for people like me, with a heavy disability.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I want to create links between aesthetics, listening to the patients, taking care of them and showing respect. That\u2019s why, I have an anecdote.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Had I not been treated in time, I would have been forced to eat only blended food.\u00a0 So, dental care also favors the socialization of the people with special needs. In the way that it would be more complicated for me and many other people in my position\u00a0 to go to restaurants and ask for the whole meal to be blended,\u00a0 or to be invited by a friend and not taste the same dishes as the others, or share a birthday cake for example.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Thinking about the relationship between patients and professionals, I want to focus on the connections between the person who receives care and the person who provides care.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">That&#8217;s why, in my opinion, the way of\u00a0 very carefully listening and taking care of, in each dentistry profession is really obvious.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">These are caring jobs, performed by people who can go so far as taking more care of others than of themselves.\u00a0 You dedicate your time, your energy, your skills to your practice, and sometimes you forget yourselves along the way.\u00a0 We, as patients, whatever needs we require, must pay attention to it too.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">If I am now known in my public life as a man with a bright smile and laughing eyes, I am very aware that this is a blessing for me,\u00a0 and I know that I owe it to the French network SOSS France, member of IADH.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Today is another opportunity for me to thank the dental surgeons who carried out my dental care treatment, which in part saved my life !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I would like to illustrate my remarks with a series of anecdotes about my experience as a dental patient and then discuss with you the lessons I drew from that experience.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">When I was very young, I used to live in an institute for physically disabled children. When the dentist would come, I would purposely run away hoping the nurses would forget that I had a dental appointment that day.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Afterwards, for several years, I had to undergo several surgical operations carried out under general anaesthesia, almost one operation every year, in order to treat a recurring problem of dental decays.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">One day, when I was 12, my uncle, who is a dental surgeon, wanted to examine my teeth in his clinic.\u00a0 I almost swallowed the little x-ray plate that he had put in my mouth.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Then, I almost broke the seat and the whole examination tray, even with 4 grown adult men holding my arms and body.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I had my first dental surgery when I turned 8. I saw a huge nurse come in and take me to the operating room.\u00a0 Scared by his size, I struggled on the stretcher.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Another day, I remember being greeted by a nurse. Completely frightened by me, she immediately stuck an anesthesia mask on my face.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Afterwards, in the recovery room, gradually regaining consciousness, I started to move on the gurney.\u00a0 I was afraid to fall to the ground because the bars did not cover the entire gurney.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Unfortunately, this happened again during many next operations.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">This indicates a lack of training of the staff to the different types of disabilities, at that time. \u00a0 Especially with invisible symptoms.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">As a teenager, in the special school in which I stayed and studied for twelve years, I had my teeth checked by the dentist who came to the school.\u00a0<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">During the years when I had complete confidence in my educational social worker, the dentist even managed to treat my teeth in the surgery,\u00a0 because he had calmly explained everything to me, and given me a little sedative to calm my fears.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">On the other hand, when my special preparation didn&#8217;t work, or when I did not trust the people, the dentist had to give me a prescription to go to a specific hospital in Paris to plan an operation under general anesthesia,\u00a0 because Saint Vincent de Paul hospital was the only place where they would take care of kids with anesthesia.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Once, I purposely forgot to give the prescription to my father. It was only after the summer was over, when he opened my backpack, that he found it.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">At that time, as a child and teenager, I have experienced several particularly traumatic moments after some operations, including hearing some snippets of conversation,\u00a0 such as &#8220;he&#8217;s crazy&#8221;\u00a0 or &#8220;what&#8217;s the point of letting him live ?&#8221; from various levels of medical staff, especially in dental care !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Before finding Handident\u00a0 special dental care French network in 2017, we went around all the hospitals in Paris region.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">The main concern : all Paris hospitals only offered to extract teeth !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">The search for the right dental care for me took a very long time.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Fortunately, a dentist friend of mine, while on holidays in Florida, met someone who knew of a network called Handident , and made the connection.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I had the opportunity to speak at the tenth anniversary of this network, saying that they had changed my life.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Due to severe bruxism, I had almost completely ground down my teeth, and I had more and more difficulties chewing and eating.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">The warm and respectful welcome was worth the wait, considering that the human quality was present at the heart of the approach of this network !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">This made all the difference to me !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">The adult man I am today is better fulfilled, dares to smile, and now shines thanks to them.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I am over 40 now, and almost all my teeth are new ! I\u2019m still smiling.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Now, I know how much in my communication mode my smile is part of my identity and helps build the image I send to people when I express myself !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">For the public man that I am becoming, it is a real asset.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I would now like to offer you the point of view of a person with a disability concerning the points that smooth and ease,\u00a0 or the points that create obstacles in the context of dental care.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">For me, and I&#8217;m sure for other people with disabilities in dental surgeries, everything plays a role.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">The texture of the chairs,\u00a0<\/span><span style=\"font-weight: 400;\">transferring the patient on the dental chair or not,\u00a0 the way it is done,\u00a0<\/span><span style=\"font-weight: 400;\">the bright light in my eyes, <\/span><span style=\"font-weight: 400;\">the sounds of the drill and other dental tools,\u00a0<\/span><span style=\"font-weight: 400;\">the typical odors of a dental surgery that sometimes trigger spastic attacks, delirium, mental anguish or else &#8230;<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">For example, the smell of eugenol makes me want to throw up !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">But for many people, it can facilitate the patients&#8217; experience.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">There is no single magic formula that will work for everyone.\u00a0 But there may be a magic word.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">And for me, this key word is respect.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I believe it is important to focus now on this attitude, this value.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I am well aware of the challenge that listening to individual needs represents for institutions where you all work,\u00a0 but it is in this listening space and time that respect can, and shall be born.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I would like respect to replace the cold notion of professional distance, which is very common in the medical field.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">This distance is intended to protect both the people who take care of, and those who are being taken care of, but it is for me, deeply incompatible with adapted special care.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">How can we hope to put in place a satisfactory approach without getting emotionally involved, without giving of ourselves ?<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I am participating today in this IADH congress, where I am convinced that this notion of respect,\u00a0 of quality of care is central,\u00a0 as much in its process of creation and organization, as in its ambitions and final aims.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I told you, I had been looking for a long time for a caring attitude that would be satisfactory for me, concerning my specific dental needs.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I have only found real respect with Handident.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">You may have noticed, but I am talking about dental care and not about dental management.\u00a0 I don\u2019t really know how to translate my point in English, but this refers to the way disability is considered in France. I won\u2019t generalize all the countries, because I don\u2019t know of all the situations.\u00a0 People with disabilities are still too often considered as a burden, a problem to be managed,\u00a0 and I refuse to let my way of presenting things emphasize this aspect.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">So this is deliberate. Moreover, if I have often felt like a burden when I was welcomed in a medical setting, I really felt that I was being cared for at Handident !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">This simple change in vocabulary illustrates a much deeper change in the way you welcome me and listen to my needs.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">In short, this vocabulary is more respectful, more human.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">If the way I express it can testify of a state of mind, it can also mark the beginning of awareness. Words are not innocent !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">So, I would now like to talk to you about a subject that is close to my heart, and which is for me closely related to the care of people with disabilities, especially in the context of dental care.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">The great question of the inclusion of people with disabilities is often related to the question of autonomy, in relation to vulnerability.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">On this subject, I am sensitive to the thoughts of Paul Ricoeur, concerning the relationship between the concepts of vulnerability and autonomy.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">On one hand, he invites us to recognize that we are all vulnerable,\u00a0<\/span><span style=\"font-weight: 400;\">and on the other hand, he proposes to consider autonomy as a reality of interdependence and connection with others,\u00a0 a relational identity.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">As the philosopher Cynthia Fleury comments,\u00a0 for Paul Ricoeur, autonomy is the possibility of attesting to oneself,\u00a0 and vulnerability is the difficulty of this attestation.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">The disabled person is therefore a victim, on one hand, of the suspicion of the impossibility of attesting to oneself,\u00a0 and on the other hand, of being considered irresponsible.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">It is a double punishment, in short !\u00a0 A traumatic existential injunction.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Thus, to be autonomous is also to be identified by oneself and by others as a subject,\u00a0 decision maker of one\u2019s own acts.\u00a0 It is also to have confidence in one&#8217;s own capacity to be this subject.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Forgive me for this somewhat philosophical comment,\u00a0 but these concepts strongly explain my attitude and my fight to ensure that each person be shown respect to be put in a situation of responsibility and of empowerment to act.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">This is where I want to make the link with my presence here today in front of you.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">It is here that my use of the term &#8220;respect&#8221; and the expression &#8220;care&#8221; is rooted.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Paul Riqueur again, defines the role of the caregiver as being to encourage, accompany and reinforce the feeling of empowerment, the confidence, in this identity of the patient being able to act and take decision for herself, or himself.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">The caregiver, and more broadly the care facility, must foster a sense of capacity in the vulnerable and autonomous person in the making,\u00a0 or at least leave the door open to the possibility of this feeling.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I feel very strongly about this point.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I think it is essential to get away from the conception of autonomy as the opposite of vulnerability.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">We are all, permanently, autonomous and vulnerable at the same time.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">The autonomous person is then the one who is able to build her or his life story by composing, WITH his vulnerability.\u00a0 And I really want to emphasize the word with.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">This vulnerability is no longer a stigma,\u00a0 but a simple component of her or his identity.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Given my dental history, I am fully aware of the difficulties that you may encounter in moving forward, in this way with people with disabilities.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">However, you intervene on what is, according to Emmanuel L\u00e9vinas, the primordial link of the recognition of the other, the face.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">From a practical and professional point of view, my experience with Handident\u00a0 makes me hope that it is possible for other people,\u00a0 but this presumes that all the institutions surrounding the dental practitioner, bend to this new approach, which has a human and financial cost, and which therefore needs to create a collective project for society.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">To conclude, I am well aware that my comments are colored by my French nationality and our French perspective.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">We have our own way of doing things,\u00a0 our specific relationship to disability, our model of health care system.\u00a0 This implies different realities around the world,\u00a0 how the COVID crisis that we are still experiencing has been managed,\u00a0 but also for ordinary care.\u00a0 For example, depending on every health system of our different countries, the out-of-pocket expenses for the patient are not necessarily the same,\u00a0 which can have an impact on the care options offered to the patient, and on her or his expectations.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">And, these expectations are changing.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I often speak of a generation that I call &#8220;the cloakroom generation&#8221;, in reference to a French series on disability with a dark sense of humor, that is filmed in the locker room of a sports center.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">To me, this generation wants to participate fully, and I believe it is also reflected in the issue of care.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Patients with disabilities have different expectations, wanting care and support that listens to their specific needs and puts them at ease.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">But, this generation of patients is growing up in parallel with a generation of professionals, trained in a different way, and who are looking for meaning and social impact in their professional careers and practices.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I believe that this reality can be the source of an enhancement for both the patients in listening to their expectations,\u00a0 and for the professionals in the way they provide ever more adequate responses to the challenges presented to them by their patients.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I am convinced that all of this requires what I have presented to you, as a relationship of trust and humanity,\u00a0 with respect, that elevates both the dentist in her or his role as caregiver, and the person as a subject of rights.\u00a0 A relationship in which the person receiving care is made active as a patient in the preparation and experience of his or her care.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I would not like to conclude without specifying that, for me, the IADH concern for quality in care is part of a more global action\u00a0 that perhaps gives a more significant orientation to the notion of an inclusive society.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I will base myself on the definition of the policy of Care, given by one of its initiators, Joan Tronto :<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">&#8220;Activity characteristic of the human species, which covers everything we do in order to maintain, perpetuate and REPAIR our world,\u00a0 so that we can live in it as well as possible.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">This world includes our bodies,\u00a0 our people, and our environment,\u00a0 all of which we seek to connect into a complex network in support of life.&#8221;<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I also invite you to ask yourself the following two questions.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">What partnerships should be set up with patients who are increasingly trained and have expertise in their own health conditions ?<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">And second, how can therapeutic patient education be introduced into the dental care environment ?\u00a0 Or, how can we exchange and transfer knowledge, skills, expertise and autonomy between patients and practitioners ?<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">To answer these questions and many others, I would like to dare propose a collective research initiative.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Throughout my presentation, I have shared with you my experience as a patient, my expectations,\u00a0 and I have outlined the main principles on which I conceive the relationship between caregiver and the person cared-for.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">But I would like to go further.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">First of all, I speak only for myself.\u00a0 I merely represent only a small part of people with special needs,\u00a0 and I believe that the experience of each and all can be useful to everyone.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Then, and this is the most important thing for me,\u00a0 I am convinced that many of you have very interesting experiences and practices to offer and share.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">That\u2019s why, I would also like to suggest that you set up a research protocol which, in the first phase, would collect practices, through a very open but rigorous grid, established with IADH and expert patients.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">In a second phase, this research work could serve as a basis for an international methodological and ethical guide,\u00a0 that your association could adopt at a future congress, to present as a contribution to the United Nations.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Please, forgive me for this audacity.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">My only justification is to commit myself to work actively on it.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I have personally initiated a reflection based on a phenomenological approach, adapted in particular by Francisco Varela, and his work in Neurophenomenology and on Buddhism.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">This is to shed light on the power to act, and the conditions of autonomy and self-determination of individuals,\u00a0 and the importance of the interactions they establish in particular situations.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I think that the situation of dental care presents characteristics which make it a very favorable ground to enlighten the role of the patients in a relation of care,\u00a0 but also, in interactions, to enlighten the inventiveness of the teams of carers, combined in a chain of multiple co-operations.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">Which may inspire the next generations, who will come after you as practitioners of special dental care specialists.\u00a0 I know how much for you, as for me, learning is giving and receiving,\u00a0 and sharing is caring !<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">I sincerely thank you for listening.\u00a0 I wish you all a very good 3 day conference.<\/span><\/p>\n<p style=\"text-align: justify;\"><span style=\"font-weight: 400;\">And I will now take a few questions if you want. You may ask them with a microphone, write them down through the app for the congress or email them to me or the organizers and I\u2019ll answer them.<\/span><\/p>\n<p style=\"text-align: right;\">Philippe Aubert<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Issy-les-Moulineaux, Paris, August 24th, 2022 Good morning, ladies and gentlemen, First of all, I would like to thank the organizers of this IADH conference for their kind invitation to give a lecture today as a key speaker. Thank you for organizing this event, in such a difficult context. To have gathered all participants in person &hellip;<\/p>\n<p class=\"read-more\"> <a class=\"\" href=\"https:\/\/ragedexister.com\/international-association-for-disability-and-oral-health-quality-matters-defining-quality-of-care-by-philippe-aubert\/\"> <span class=\"screen-reader-text\">International Association for Disability and Oral Health Quality matters defining quality of care by Philippe Aubert<\/span> Lire la suite\u00a0\u00bb<\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[6],"tags":[11,29,28,118,114,120,116,113,115,121,24,13,119,117],"_links":{"self":[{"href":"https:\/\/ragedexister.com\/wp-json\/wp\/v2\/posts\/744"}],"collection":[{"href":"https:\/\/ragedexister.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ragedexister.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ragedexister.com\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/ragedexister.com\/wp-json\/wp\/v2\/comments?post=744"}],"version-history":[{"count":3,"href":"https:\/\/ragedexister.com\/wp-json\/wp\/v2\/posts\/744\/revisions"}],"predecessor-version":[{"id":752,"href":"https:\/\/ragedexister.com\/wp-json\/wp\/v2\/posts\/744\/revisions\/752"}],"wp:attachment":[{"href":"https:\/\/ragedexister.com\/wp-json\/wp\/v2\/media?parent=744"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ragedexister.com\/wp-json\/wp\/v2\/categories?post=744"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ragedexister.com\/wp-json\/wp\/v2\/tags?post=744"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}